Document Type
Dissertation
Degree
Doctor of Philosophy
Major
Education, Teaching-Learning Processes
Date of Defense
4-21-2026
Graduate Advisor
April Regester
Committee
Dr. April Regester
Dr. Thomasina Hassler
Dr. Jennifer Fisher
Dr. Phyllis Balcerzak
Abstract
This phenomenological case study, employing narrative inquiry and thematic analysis, captured the first-person voice of emerging adults (ages 20–28) with intellectual, developmental, and learning disabilities to explore how experiences of risk and self-determination shaped their personal narratives, or story of self. Guided by Critical Disability Theory, Foucault’s concept of relational power, and Shogren’s Causal Agency Theory, the study challenged the systemic bubble-wrapping that denies this population the "dignity of risk" (Perske, 1972). Data were collected from six participants through semi-structured interviews, adapted photovoice submissions, and participant selfreflections. The findings revealed that the phenomenon of becoming, catalyzed by intellectual adaptive risk-taking, was driven by three essential, interacting factors: Space (conceptualized as probeerruimte, enriched and challenging, physical and psychological environments (Budge & Wels, 2016; Diamond, 1964)), Experience (accumulated opportunities for autonomy and consequence learning (Vygotsky, 1927)), and Support (Lindell et al., 2017) (relational guidance that enables agency). Furthermore, the study suggests that creative expressions may function as a psychological gateway to risk-taking (Fan et al., 2024) and self-determination (Shogren & Raley, 2024; Wehmeyer, 1999) for some within this population. This research adds a crucial, missing perspective to the literature, arguing that dignity of risk and self-determination function in tandem, and provides a framework for educators and support systems to intentionally integrate intellectual adaptive risk-taking to foster self-actualization and full identity development.
Recommended Citation
Worth, Christopher R. J., "Journey of Becoming: Risk and Self-Determination in the Story of Self for Adults with Intellectual, Developmental, and Learning Disabilities A Phenomenological Case Study Employing Narrative Inquiry and Thematic Analysis" (2026). Dissertations. 1602.
https://irl.umsl.edu/dissertation/1602
Included in
Accessibility Commons, Art Education Commons, Educational Psychology Commons, Gifted Education Commons, Social and Behavioral Sciences Commons, Social and Philosophical Foundations of Education Commons, Special Education and Teaching Commons